Thursday, June 4, 2020

Tag: Resources

Christopher & Dana Reeve Foundation and Shepherd Center Publish New Resource to Help Prepare...

Published: April 23, 2020

Booklet provides information, hope for patients and families.

The Christopher & Dana Reeve Foundation, in collaboration with Shepherd Center, recently published “Restoring Hope: Preparing for Rehabilitation After Spinal Cord Injury.” The booklet aims to help patients and families learn about spinal cord injury, organize information, chart a path and choose a rehabilitation program.

Medical student’s journey inspires UB community

Published: April 2, 2020

Farzana Ali learned many important skills throughout her four years as a medical student in the Jacobs School of Medicine and Biomedical Sciences. But to the many people who came in contact with her along the way, it was she who was teaching valuable lessons — in patience and perseverance.

Persons With Disabilities Discounts Guide: The Ultimate List of Stores & Services

Published: January 10, 2020

The Dealhack Persons With Disabilities Discounts Guide is a list of stores and brands that offer discounts for persons with psychological, psychiatric, or cognitive disabilities. Every three months, we update the lists to include the newest offers to help you save on your purchases.

The list currently consists of more than 80 stores and services divided into 19 categories. It can be saved in PDF format and used as the ultimate savings guide for persons with disabilities.

Northwest Regional Spinal Cord Injury System

Published: August 3, 2019

The Northwest Regional Spinal Cord Injury System (NWRSCIS) is a regional center of spinal cord injury care, research and education in the Department of Rehabilitation Medicine at the University of Washington. Programs and services are provided at both the University of Washington Medical Center and Harborview Medical Center.

The mission of the NWRSCIS is to improve the lives of people with SCI through excellent patient care, research and education. We provide specialized care to persons with SCI, conduct clinically relevant research and disseminate the most useful, evidence-based information to people with SCI, their families and professionals.

Adaptive Clothing Takes Stress out of Dressing

Published: October 15, 2018

New garments and accessories help caregivers assist those who are older or mobility challenged

While no two caretakers face the same day-to-day issues, one universal strain remains: the inherent challenge of dressing loved ones who can’t dress themselves.

Resources to support safer bowel care for patients at risk of autonomic dysreflexia

Published: July 25, 2018

Patients with spinal cord injury or neurological conditions may have neurogenic bowel dysfunction, which often means they depend on routine interventional bowel care, including the digital (manual) removal of faeces (DRF).

Some of these patients, especially those with spinal cord injury above T6, are particularly susceptible to the potentially life-threatening condition autonomic dysreflexia, which is characterised by a rapid rise in blood pressure, risking cerebral haemorrhage and death. A small number of patients who have had a severe stroke or who have severe forms of Parkinson’s Disease, multiple sclerosis, cerebral palsy, or spina bifida may also be susceptible to autonomic dysreflexia.

Nurses’ role in both prevention and treatment of cervical and lumbar injuries

Published: May 21, 2018

A spinal cord injury is devastating for a patient, their family and their caregivers. Every 44 minutes a person sustains a spinal cord injury (SCI) in the United States resulting in approximately 12,000 SCIs each year.1 There are more than 265,000 persons currently living with this type of injury in the United States, and one out of every 50 persons lives with paralysis. 1 So as nurses, what can we do to reduce the risk of spinal cord injury in hopes of positively affecting these statistics?

The Risk of Sleep Apnea for Quadriplegics

Published: May 11, 2018 | Spinal Cord Injury:

Not sleeping well? A new study shows more than 70 percent of people with quadriplegia also have obstructive sleep apnea (OSA).

For many years, the N-ABLE team has heard stories about friends with quadriplegia who don’t sleep well at night or who only sleep a few hours a night. We wondered if there was a medical reason for this. As it turns out, there is.

A new study in The Journal of Physiology tries to show why more than 70 percent of people with quadriplegia also have obstructive sleep apnea (OSA), a medical condition that causes the upper airway to narrow and close repeatedly while people are asleep.

What is life like with a spinal cord injury?

Published: November 18, 2017

Having a spinal cord injury changes some things forever, but you can still have a full and rewarding life. A saying among people who have a spinal cord injury is, “Before your injury, you could do 10,000 things. Now you can do 9,000. So are you going to worry about the 1,000 things you can’t do or focus on the 9,000 things you can do?”

After they adjust, many people with spinal cord injuries are able to work, drive, play sports, and have relationships and families. Your rehab team can provide the support, training, and resources to help you move toward new goals. It’s up to you to make the most of what they have to offer.

Accomable.com

Published: October 30, 2017
Accomable.com

Accomable is the world’s leading platform for booking accessible hotels and holiday rentals. Our mission is to enable anyone to go anywhere.

Accomable was founded in 2015, by Srin Madipalli and Martyn Sibley – two friends with Spinal Muscular Atrophy who have travelled all over the world. Frustrated by the difficulty of finding accessible places to stay and reliable information, Accomable was launched to make it easier for everyone to travel, regardless of disability.

Today, we list 1,100 properties in more than 60 countries, all of which have step free access, high quality photos and detailed information on a whole range of accessibility adaptations.

Do NOT follow this link or you will be banned from the site!