Monday, February 24, 2020

Tag: Advocacy

Redefining ‘Cured’

Published: September 23, 2009

A spinal-cord-injury activist puts a new priority on living with—not fighting—paralysis.

Ever since 1988, wheelchairs have figured into Alan T. Brown’s dreams. That was the year his neck was crushed by an ocean wave at a Club Med in Martinique. He was 20 years old, young and single and free, and in one second went from a vibrant college student to a quadriplegic, with no movement below his chest. The dreams began almost instantly, usually with the wheelchair off to one side, Brown standing nearby. “In the beginning, I was convinced I would walk again—1,000 percent,” says Brown, now 42, who runs his own public-relations company in Hollywood, Fla. “My old mottos were ‘There’s light at the end of the tunnel’ and ‘Never say never.’ I did think there was going to be a cure.”

City to host Ms. Wheelchair America pageant this weekend

Published: August 24, 2009

A diverse group of women from 27 states — college students, volunteers, office workers, grandmothers — will gather in Rapid City this week to compete for the national Ms. Wheelchair America title.

The 37th annual pageant will be at Rushmore Plaza Holiday Inn. In 2000, the national winner was Tracy Charlton-O’Conner, whose parents, Terry and Karen Charlton, live in Rapid City.

This year’s winner will succeed the reigning Ms. Wheelchair America Michelle Colvard, who is the executive director of the City of Houston’s Office for People with Disabilities.

How you can help our most severely wounded warriors

Published: July 15, 2009

wwpToday’s Care. Tomorrow’s Cure.

Half of what we do here is about the care! And as many of you know, care costs a lot.

Our friends at the Wounded Warrior Project are asking Congress to pass legislation to establish a national program to train and provide ongoing supports and compensation to family caregivers of our most severely wounded warriors.

United Spinal Association Action Alert

Published: July 10, 2009

thomas_videorndHow important is health care reform to you? As necessary as having access to adequate and affordable health care coverage when and where you need it? As important as receiving the health care support and services that will allow you or a loved one to remain at home and in your community?

United Spinal Association believes that national health care reform is important to all Americans with disabilities and chronic conditions.

We believe that the present system of rationed health care has failed Americans.

Christopher and Dana Reeve Paralysis Act Signed by President Obama as Part of Omnibus...

Published: March 30, 2009

Christopher & Dana Reeve Foundation expresses appreciation to Congressional co-sponsors for passing first legislation specific to the paralysis community

SHORT HILLS, N.J., March 30 /PRNewswire-USNewswire/ — The Christopher & Dana Reeve Foundation, the national, non-profit organization dedicated to finding cures and treatments for spinal cord injuries and improving the lives of people living with paralysis, applauds President Obama for signing the Omnibus Public Lands Bill. Passed by the U.S. House of Representatives on March 25 and the U.S. Senate on January 15, Title XIV of the Bill contains the Christopher and Dana Reeve Paralysis Act. The Act was named for the late Christopher Reeve and his wife Dana, whose courage and grace in the face of adversity, coupled with their extraordinary activism, were an inspiration to millions around the world.

Cash boost coming for stagnant U.S. medical research

Published: February 17, 2009

After years of stagnant funding, medical research in the United States is set for a big cash infusion that experts expect will boost work on a range of ailments as well studies involving human embryonic stem cells.

The $787 billion economic stimulus measure President Barack Obama signed on Tuesday includes $10 billion for the National Institutes of Health, with more than $8 billion of it to fund medical studies and the rest to upgrade research facilities.

Group protests SRS assistance freeze

Published: January 15, 2009

A small group of protesters, several of whom were seated in wheelchairs, gathered in 30-degree weather outside the Hays office of Kansas Social and Rehabilitation Services on Wednesday morning.

The idea was to keep things peaceful. There was no chanting, and no entrances were blocked. Rather, the group hoped to educate the public about a recent waiver freeze implemented by SRS, said organizer Lou Ann Kibbee, Hays.

Obama may reverse many Bush actions

Published: November 9, 2008

WASHINGTON — Transition advisers to President-elect Barack Obama have compiled a list of about 200 Bush administration actions and executive orders that could be swiftly undone to reverse White House policies on climate change, stem cell research, reproductive rights and other issues, according to congressional Democrats, campaign aides and experts working with the transition team.

A team of four dozen advisers, working for months in virtual solitude, set out to identify regulatory and policy changes Obama could implement soon after his inauguration. The team is now consulting with liberal advocacy groups, Capitol Hill staffers and potential agency chiefs to prioritize those they regard as the most onerous or ideologically offensive, said a top transition official who was not permitted to speak on the record about the inner workings of the transition.

Christopher & Dana Reeve Foundation Launches First-Ever National Advertising Campaign

Published: November 3, 2008

The Reeve Foundation debuts new national ad campaign giving consumers a look into the world of paralysis

SHORT HILLS, N.J., Nov. 3 /PRNewswire/ — The Christopher & Dana Reeve Foundation has announced the launch of its first-ever national advertising campaign. The campaign presents an edgier side of the Reeve Foundation, by giving the public a perspective of what life is like through the eyes of someone living with paralysis.

U.S. Sen. Harkin- Statement Regarding the Christopher and Dana Reeve Paralysis Act

Published: September 29, 2008

Washington, D.C. – U.S. Senator Tom Harkin (D- IA) delivered the following remarks yesterday on the floor of the Senate urging the adoption of S. 1183, the Christopher and Dana Reeve Paralysis Act.

The text of the speech is below.

Mr. HARKIN. Mr. President, I come to the Senate floor with a heavy heart and a clear purpose. Last Thursday would have been the 56th birthday of a great actor, a devoted father and husband, Christopher Reeve. Many Americans got to know Christopher Reeve when he put on that blue and red uniform of Superman and acted in so many Superman roles. He was also on television and stage. So we always think of Christopher Reeve as the first Superman.

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