The Christopher & Dana Reeve Foundation, a national nonprofit dedicated to improving quality of life for individuals living with paralysis, is pleased to announce the release of its newly updated Paralysis Resource Guide (PRG) from the Foundation’s Paralysis Resource Center (PRC). Since 2002, when the PRC was first established, the Foundation has distributed over 200,000 copies of the PRG to people living with paralysis, their caregivers and family members.
The 4th edition of the PRG has up to date paralysis-related information, topics on secondary conditions (pain, spasticity, etc.), travel, employment, disability benefits, and sports and recreation. There are entire sections devoted to caregivers, military and veterans and children living with paralysis. A new Profile section features individual stories from people and families impacted by the PRC’s programs and resources such as Information Specialists, the Peer & Family Support Program, Military and Veterans Program (MVP), Quality of Life Grant Program and the NeuroRecovery Network.
In this updated edition, the PRG features a revamped chapter (Chapter 6) on the latest tools and technology including assistive technology, home modifications, wheelchairs, environmental controls, universal design, and driving an adapted car. Wireless connectivity is featured for the first time with sections on eye gaze technology, voice recognition, and information on new products in this area. Other new topics include:
The ABLE Act is a new tool for tax-exempt saving and financial planning for people with disabilities.
The Resource Map, a new feature on the Foundation’s website, allows one to look up resources by entering a zip code.
New spinal cord injury treatments and rehabilitation information including epidural stimulation.
A change in terminology from pressure sores to pressure injuries.
Look out for the Spanish version of the Paralysis Resource Guide in the Summer of 2018.
About the Reeve Foundation:
The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for people living with paralysis through grants, information and advocacy. We meet all 20 of the Better Business Bureau’s standards for charity accountability and hold the BBB’s Charity Seal. The Paralysis Resource Center (PRC) is a program of the Reeve Foundation and is funded through a cooperative agreement with the Administration for Community Living (cooperative agreement number 90PR3002). For more information, please visit our website at www.ChristopherReeve.org or call 800-539-7309.
With hard work and ingenuity, three VCU occupational therapy students devised a swiveling computer table that will help Derrick Bayard increase his independence.
Before dawn on Aug. 8, Derrick Bayard began having severe pain in his abdomen, followed by body spasms. Soon after, it became hard to breathe. He was home alone, a detail made exponentially more important — and dangerous — by the fact that he’s a quadriplegic, unable to use his hands and feet. Continue Reading »
Twenty years ago, Justin Hosler met a man he shared two things with: life-changing injuries that rendered both of them unable to walk and physical therapy sessions. In rehabilitation, it bothered Hosler to watch the man refuse to try.
“His refusal to try motivated me … there’s a lot of life left and I couldn’t just sit there and not live it,” said Hosler, who now farms 1,800 acres full-time in Huntington County.
EVA FACIAL MOUSE is an application developed and promoted by CREA with the support of Fundación Vodafone España.
EVA FACIAL MOUSE is a free and open source application that allows the access to functions of a mobile device by means of tracking the user face captured through the frontal camera. Based on the movement of the face, the app allows the user to control a pointer on the screen (i.e., like a mouse),which provides direct access to most elements of the user interface.
People with amputations, cerebral palsy, spinal cord injury, muscular dystrophy, multiple sclerosis, amyotrophic lateral sclerosis (ALS) or other disabilities may be beneficiaries of this app. Continue Reading »
Driving with a disability can be a huge accomplishment, whether it is an amputation or something more severe. In Sam Schmidt’s case, it couldn’t get more severe. In 2001 Sam was paralyzed when his race car went backwards into the wall at 210 mph. Sam’s doctors were thinking he may not live the year but Sam defied the odds and currently lives life as a quadriplegic. Continue Reading »
On any given day up to 25 individuals with varied disabilities are hard at work in the EP!C Hub computer lab in Peoria, earning a paycheck and cultivating independence thanks to assistive technology.
The Hub has a variety of adaptive equipment, including specialized keyboards and screen-reading software. Hub workers with disabilities design and print flyers, posters and calendars; create business cards; and even make and sell their own greeting cards.
“Technology definitely helps them to work and live a more rewarding fulfilling productive life. Because a lot of them have those abilities; they just need a little bit of assistance,” said Lauren Coyle, EP!C’s director of specialized programs. Continue Reading »
Todd is the CEO of a technology consulting company and a prominent member of the quadriplegic community. With Siri, Switch Control, and the Home app, he can open his front door, adjust the lights in his house, and queue up a party playlist. Continue Reading »