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Christopher & Dana Reeve Foundation releases new edition of Paralysis Resource Guide

Published: October 10, 2017 | Category: Information

The Christopher & Dana Reeve Foundation, a national nonprofit dedicated to improving quality of life for individuals living with paralysis, is pleased to announce the release of its newly updated Paralysis Resource Guide (PRG) from the Foundation’s Paralysis Resource Center (PRC). Since 2002, when the PRC was first established, the Foundation has distributed over 200,000 copies of the PRG to people living with paralysis, their caregivers and family members.

The 4th edition of the PRG has up to date paralysis-related information, topics on secondary conditions (pain, spasticity, etc.), travel, employment, disability benefits, and sports and recreation. There are entire sections devoted to caregivers, military and veterans and children living with paralysis. A new Profile section features individual stories from people and families impacted by the PRC’s programs and resources such as Information Specialists, the Peer & Family Support Program, Military and Veterans Program (MVP), Quality of Life Grant Program and the NeuroRecovery Network.

In this updated edition, the PRG features a revamped chapter (Chapter 6) on the latest tools and technology including assistive technology, home modifications, wheelchairs, environmental controls, universal design, and driving an adapted car. Wireless connectivity is featured for the first time with sections on eye gaze technology, voice recognition, and information on new products in this area.  Other new topics include:

  • The ABLE Act is a new tool for tax-exempt saving and financial planning for people with disabilities.
  • The Resource Map, a new feature on the Foundation’s website, allows one to look up resources by entering a zip code.
  • New spinal cord injury treatments and rehabilitation information including epidural stimulation.
  • A change in terminology from pressure sores to pressure injuries.
  • Updated suicide prevention hotlines.

To order a FREE copy(ies), please call 1-800-539-7309 or 973-379-2690. To order online or view via PDF, please see www.ChristopherReeve.org/Guide, or you can email us at infospecialist@ChristopherReeve.org. The PRG is also available on a flash drive if requested. ISBN 978-0-9960951-5-0

Look out for the Spanish version of the Paralysis Resource Guide in the Summer of 2018.

About the Reeve Foundation:

The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for people living with paralysis through grants, information and advocacy. We meet all 20 of the Better Business Bureau’s standards for charity accountability and hold the BBB’s Charity Seal. The Paralysis Resource Center (PRC) is a program of the Reeve Foundation and is funded through a cooperative agreement with the Administration for Community Living (cooperative agreement number 90PR3002). For more information, please visit our website at www.ChristopherReeve.org or call 800-539-7309.

SOURCE Christopher & Dana Reeve Foundation

Related Links
Paralysis Resource Guide (PRG)

New functional scoring helps better treatment for SCI during hESC

Published: October 6, 2017 | Category: News

During the past 2 decades, cell-based therapies for SCI have been researched in several studies. Replacement of damaged neural tissues and re-establishing connections between the central and peripheral nervous system is vital for the treatment strategy for patients with SCI. According to factsheet of WHO, over 5 hundred thousand people are estimated to suffer from SCI per year. American Spinal Injury Association’s (ASIA) Impairment Scale is a universally accepted scale to assess the SCI, but this scale does not cover all parameters of SCI. Development of new scoring system by Nutech mediworld has the remaining parameters covered in its Nutech Functional score(NFS). Continue Reading »

Question Time with Jai (Spinal Cord Injury)

Published: October 5, 2017 | Category: Answers | Spinal Cord Injury:

Jai’s life nearly ended after a dip in the ocean resulted in a high-level spinal injury. He explains how he’s carved out a great life for himself and why he has no use for pick-up lines. Continue Reading »

Magee Rehabilitation Creates Accessible Travel Video for People with Disabilities

Published: October 4, 2017 | Category: Information

Magee Rehabilitation Hospital partnered with Southwest Airlines to create this video of helpful tips for people with disabilities who wish to travel by plane while using a wheelchair. Continue Reading »

What is Sepsis?

Published: October 3, 2017 | Category: Answers

Sepsis is a life threatening medical condition that arises when the body’s attempt to fight an infection results in the immune system damaging tissues and organs. Continue Reading »

Magic Wheelchair

Published: October 1, 2017 | Category: Links

MagicWheelchair.org

Magic Wheelchair is a nonprofit organization that builds custom costumes for children in wheelchairs. Our goal is to put a smile on the face of every child in a wheelchair.

Ryan and Lana Weimer, the founders of Magic Wheelchair, have five children, three of whom were born with Spinal Muscular Atrophy, which requires the use of wheelchairs for the entirety of their lives.

Each Halloween, Ryan made the biggest, “baddest” costumes he could for his sons, Keaton and Bryce. Once news of these costumes spread, Ryan began receiving requests from parents around the world asking if he would transform their kids’ wheelchairs into “magic”.

Continue Reading »

Wheelchair no barrier for rescue worker

Published: September 26, 2017 | Category: News | Spinal Cord Injury:

‘There are no words to describe the things I’ve seen,’ says photographer

Being confined to a wheelchair Being a wheelchair user with a spinal cord injury didn’t stop one determined Michoacán man from contributing to the rescue efforts in Mexico City after last week’s big earthquake.

Twenty-six-year-old Eduardo Zárate traveled to the capital after he heard that one of his friends was missing in the Del Valle neighborhood, one of the worst affected parts of the city. Continue Reading »

Teen rescuer who become quadriplegic celebrates 50 years in a wheelchair

Published: September 24, 2017 | Category: News | Spinal Cord Injury:

Half a century in a wheelchair – it’s not a milestone celebrated often, if at all.

But Peter Kuprijanow is not your average person.

Hailing from Killara, Mr Kuprijanow and his friends were the talk of the town in 1966 when they came to the rescue of a family whose car had crashed into the Kiewa River – one person tragically died, but an elderly couple and two children were saved.

A year later, the young man was again in everyone’s thoughts, after he broke his neck at that same spot. Continue Reading »

‘I never got to thank the stranger who saved my life’ – Coldplay fan left paralysed after diving into pool on family holiday

Published: September 23, 2017 | Category: News | Spinal Cord Injury: , ,

Rob O’Byrne was left in a wheelchair after he dived into the shallow end of a swimming pool

A Dublin man has described his “nightmare holiday” after he was left paralysed in a freak accident while in Spain with his family.

Rob O’Byrne (29) from Co Dublin was drinking by the pool with his family when he jumped into the shallow end of the pool. Continue Reading »

They created a computer station — and changed a quadriplegic patient’s life

Published: September 21, 2017 | Category: News | Spinal Cord Injury:

With hard work and ingenuity, three VCU occupational therapy students devised a swiveling computer table that will help Derrick Bayard increase his independence.

Before dawn on Aug. 8, Derrick Bayard began having severe pain in his abdomen, followed by body spasms. Soon after, it became hard to breathe. He was home alone, a detail made exponentially more important — and dangerous — by the fact that he’s a quadriplegic, unable to use his hands and feet. Continue Reading »