Saturday, August 17, 2019

Spina Bifida

Toddler With Spina Bifida Can Now Get Around Thanks to Dad’s Creative Invention

Published: July 1, 2019 | Spinal Cord Injury:

A loving dad wanted his toddler son with spina bifida to have more mobility, so he created a device to help.

‘It’s to show them what we can do, not what we can’t do’

Published: June 17, 2019 | Spinal Cord Injury: , , ,

Strength, skill and no-holds-barred hits: wheelchair hurling stars all set for international duty

The question was always coming, so obvious and predictable that they can see it sailing through the air long before it’s fired their way. Pat Carty and James McCarthy, the captain and vice-captain of the Irish wheelchair hurling team, know that before we talk sport, about the rich and varied abilities they’ve honed in recent years, there’ll be an inevitable query about their disabilities.

Teen In Wheelchair Marches In Macy’s Thanksgiving Day Parade With Friend’s Help

Published: November 21, 2018 | Spinal Cord Injury:

Drew Bell was born with Spina Bifida and uses a wheelchair to get around, but he wouldn’t let that dash his dream of marching with his school band.

Para Dance Sport seed planted in USA

Published: July 7, 2018 | Spinal Cord Injury: , ,

Course sprouts excitement in dance community

The media coverage, buzz and participant feedback around the Para dance sport course in Bloomfield Hills, Michigan, has Cheryl Angelelli confident this is only the beginning in the USA.

The four-time Paralympic swimmer-turned-dancer helped organize the two-day course in late June that introduced the basics of the sport to 25 instructors from around the country.

Boy receives Track Chair from Outdoor Ability Foundation

Published: November 16, 2015 | Spinal Cord Injury:

Tucker-WickThe Outdoor Ability Foundation donates a $10,000 chair to an 8-year-old

FULTONDALE, Ala. —Tucker Wick is a boy who loves the outdoors, but getting around isn’t easy. Trying to find the right “tools” to be outside has been a struggle. But today, thanks to the Outdoor Ability Foundation he’s getting freedom, in the form of a really cool ride.

Grayson Phillips, 16, and his dad, Scott, founded the Outdoor Ability Foundation. They love the outdoors and want to help other families do the same.

Learn about Spina Bifida

Published: October 5, 2014 | Spinal Cord Injury:

Spina Bifida Association 2014October is National Spina Bifida Awareness Month, a time to educate the public about the most common permanently disabling birth defect while celebrating the lives of the more than 166,000 Americans affected.

One out of every 1,000 newborns in the United States is born with spina bifida.

Disabled stuntman pulls off biggest wheelchair backflip yet on 50ft ‘giganta ramp’

Published: June 1, 2011 | Spinal Cord Injury:

A daredevil disabled stuntman who became the first man to complete a double backflip in a wheelchair has pulled off his most daring jump yet from a 50ft ‘giganta ramp’.

Fetal Surgery Takes a Huge Step Forward in Treating Children with Spina Bifida

Published: February 10, 2011 | Spinal Cord Injury:

The Children’s Hospital of Philadelphia Is One of Three Centers in Newly Released Landmark Study

Performing delicate surgery in the womb, months before birth, can substantially improve outcomes for children with a common, disabling birth defect of the spine. Experts at The Children’s Hospital of Philadelphia (CHOP) co-led a new landmark study showing that fetal surgery for spina bifida greatly reduces the need to divert fluid from the brain, improves mobility and improves the chances that a child will be able to walk independently.

Spina bifida is the most common birth defect of the central nervous system, affecting about 1,500 babies born each year in the United States.

Spina bifida a challenge, not a roadblock

Published: July 2, 2010 | Spinal Cord Injury:

Kim Sloop of Michigan City, a May graduate of Purdue University North Central, is ready to use her bachelor’s degree in behavioral sciences in a career working with children with disabilities and their parents.

She’s been an advocate for people with spinal cord disabilities and injuries as a member of the Northwest Indiana Spinal Cord Injury Group. She’s visited Washington, D.C., to speak with Sen. Richard Lugar, R-Ind., and U.S. Rep. Peter Visclosky, D-Merrillville, about the Christopher and Dana Reeve Paralysis Act, which has been signed into law.

Experimental Surgery For Paralyzed Kids

Published: June 9, 2009 | Spinal Cord Injury:

BACKGROUND: A new surgery is helping patients who have suffered a spinal cord injury or were born with spina bifida regain control of their bladder and bowel function.

Spina bifida is a serious birth defect that occurs when the tissue around the spinal cord doesn”t close properly. The spinal cord pushes through the opening, damaging nerve ends. It affects two out of every 1,000 births.

After birth, surgeons close the opening but scar tissue is left behind, which can cause neurological problems. As kids grow, they must have a detethering procedure to trim away the scar tissue.

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