Monthly Archives: December 2013
FLORENCE, Ky. – Alisha Waters’ estranged husband tracked her down, shot her five times and then turned the gun on himself.
The Aug. 6 shooting left her paralyzed.
Alisha’s life will never be the same, but after months of rehab in Atlanta, she’s glad to be home.
Sitting in her wheelchair, she talked about bravely facing her new reality and her reason for fighting to live.
He believed that all people with disabilities should be able to lead healthy and productive lives, no matter where they live.
By Matthew Reeve: My father, actor Christopher Reeve, loved to travel, even after he was paralyzed from a severe spinal cord injury. During trips to places in the United States and abroad, he spoke with many people who, like him, had to find ways to navigate daily life while living with paralysis. These conversations only furthered his resolve that all people with disabilities should be able to lead healthy and productive lives, no matter where they live.
The Roman Reed Foundation is a 501(c)(3) charitable organization dedicated to the cause of cure for neurological disorders. While our immediate and overarching goal is the alleviation of spinal cord injury paralysis, we believe our goals are best advanced by a unified approach to the field of regenerative medicine. Accordingly, we will work with leading organizations in related areas, including (but not limited to): spinal muscular atrophy, traumatic brain injury, amyotrophic lateral sclerosis, Huntington’s disease, multiple sclerosis, Parkinson’s, and other malfunctions and diseases of the central nervous system. We support not only scientists, but also the educational process to awaken a national awareness.
The World Stem Cell Summit honored five champions of stem cell research Thursday evening. They are: Philanthropists Denny Sanford and Malin Burnham; stem cell researcher/blogger/patient advocate Paul Knoepfler; medical journal publisher Mary Ann Liebert, and patient advocate Roman Reed.
For this blog post, I’m writing about Reed, because he gave arguably the most memorable speech advocating more stem cell research.
A spinal cord injury from a college football accident left Reed mostly paralyzed. He’s recovered use of his arms, but cannot walk. Reed and his father, Don, were among the foremost proponents of Prop. 71, the initiative that set aside $3 billion in bond money to fund stem cell research and disease treatments in California.
Healthcare providers tend to think paralyzed people have a very low. Actual spinal cord injury survivors tend to feel differently.
Earlier this month, a 32-year-old husband and father fell 16 feet from a tree while hunting, broke his neck and was left paralyzed from the neck down—making him quadriplegic—and reliant on a ventilator to breathe. According to the Indy Star, while he was still in the intensive care unit, in the early phases of his injury, his family told his health care providers that they didn’t think that he would want to live as a quadriplegic. According to the story, the doctors discontinued his sedation, and he awoke enough to verify that he did not wish to live as a quadriplegic. The doctors discontinued life sustaining measures and he died about five hours later, surrounded by his family and friends.
There are over a million people with spinal cord injuries (SCI) in the United States alone with an estimated 11,000 new cases every year. Furthermore, it is estimated that there are, at least, 100,000 veterans with SCI, making the VA the largest integrated health care system in the world for SCI care. But despite this large prevalence, researchers are still discovering all the various ways that SCI affect those with this condition beyond the obvious paralysis.
THE STORY: Hi! I’m Britt Martin, co-founder and executive director of SPINALpedia. My dad was paralyzed in a car accident when I was 12 years old. I made this video to share why SPINALpedia needs to exist.
As many as 500,000 people suffer a spinal cord injury each year. People with spinal cord injuries are 2 to 5 times more likely to die prematurely, with worse survival rates in low- and middle-income countries. The new WHO report, “International perspectives on spinal cord injuries”, summarizes the best available evidence on the causes, prevention, care and lived experience of people with spinal cord injury.
An experimental device is letting paralysed people drive wheelchairs simply by flicking their tongue in the right direction.
Key to this wireless system: Users get their tongue pierced with a magnetic stud that resembles jewellery and acts like a joystick, in hopes of offering them more mobility and independence.
Researchers reported Wednesday that 11 people paralysed from the neck down rapidly learned to use the tongue device to pilot their wheelchairs through an obstacle course full of twists and turns, and to operate a computer, too.