We take our ability to communicate for granted. But there are over 60 million people in the world suffer from spinal cord injuries and brain strokes. Conditions such as ALS (Amyotrophic Lateral Sclerosis) and MNDs (Motor Neuron Diseases), render them partially or completely paralysed.
Eddy Lefrançois built his site to share information regarding my diagnosis with ALS, and raise awareness about this terrible disease — please read about Eddy’s journey with ALS since the early 90s. He has surpassed his three to five year sentence as of April 1997. Eddy may not control the fact that he has ALS, but he controls the actions to make people aware that ALS is a terrible disease to live with… anybody can develop it at any time; we have to make it a treatable disease, not terminal. Eddy is proud to be a member of the ALS Canada Ambassador Program. «Let’s Roll Out ALS»
For quadriplegics, life can be extremely isolated. Those without the ability to control their arms, legs or head must rely entirely on a caregiver to move, or even turn around, their wheelchair.
One cause of quadriplegia is the neurodegenerative disease ALS, which afflicts an estimated 12,000 to 15,000 in the U.S., according to the CDC.
Because the disease is progressive, those afflicted can go from having completely normal motor control to being fully quadriplegic without the ability to talk, in the span of just a few years. Previously having the ability to move independently can make the loss of movement even more difficult for those with ALS.
Device is like having a ‘mouse inside your mouth,’ says Emma Mogus
An Ontario teen has won a $2,000 science prize for creating and building a computer mouse that is controlled by the tongue.
Emma Mogus, 17, from Oakville, built the TiC, or Tongue-Interface-Communication. There are five buttons inside a mouthguard-type device, which is connected to a computer. Each button controls a different mouse direction.
This story starts in 1955, upon the death of Albert Einstein, when the pathologist charged with performing the famous scientist’s autopsy stole his brain.
Fast forward to the 1980s when a University of California, Berkeley scientist was studying parts of the stolen goods involved in complex thinking and discovered that the father of relativity had more of certain types of cells, called astrocytes, than other human brains studied.
Today, another 30 years later, scientists still don’t have a solid grasp on everything these cells do in the human nervous system, largely because they’re difficult to study.
Unless you live under a rock (or aren’t on Facebook or Twitter), you’ve probably heard of the ALS Ice Bucket Challenge. Yes, all those people bombing your newsfeed by posting videos of themselves getting a bucket of ice water dumped on them are actually doing it for a specific charitable and good cause.
Amyotrophic lateral sclerosis (ALS) is a gradual neurodegenerative disease that affects brain and spinal cord nerve cells. The progressive degeneration of the motor neurons from the brain to the spinal cord and the spinal cord to the body’s muscles ultimately lead to the neurons dying.
The ice bucket challenge continues but there are many asking what it is all for. The challenge is now reaching other parts of the world, and many have not been fully clued into the reason behind it. Many on Facebook are questioning the mentality of those throwing buckets of ice water over their heads.
While there are now many charities claiming they started it, the ALS Association officially encouraged people to donate money after throwing buckets of ice water over their heads. The water temporarily affects the body’s muscles and nervous system, making it difficult to move limbs and even breathe. These are some of the symptoms that ALS sufferers have, but for the long-term.
NSI-566 to be tested in patients with chronic spinal cord injury
ROCKVILLE, Md., Jan. 14, 2013 /PRNewswire/ — Neuralstem, Inc. (NYSE MKT: CUR) announced that it received approval from the United States Food and Drug Administration (FDA) to commence a Phase I safety trial of its lead cell therapy candidate, NSI-566, in chronic spinal cord injury patients. This open-label, multi-site study, will enroll up to eight patients with thoracic spinal cord injuries (T2-T12), who have an American Spinal Injury Association (AIS) A level of impairment, between one and two years after injury. AIS A impairment refers to a patient with no motor or sensory function in the relevant segments at and below the injury, and is considered to be complete paralysis.
In 2007, an ATV accident left military veteran Scott Williams with a spinal cord injury that paralyzed him from the upper chest down. In the summer of 2012, after undergoing an autologous adipose-derived stem cell transplant into his spine at the Precision StemCell facility in Gulf Shores, Williams began noticing increased sensation in his left leg and the ability to slightly move both feet.
“Within one month, I was able to move my feet some, and I haven’t done that in over five years,” Williams stated.
NEW YORK, Aug. 29, 2012 /PRNewswire-USNewswire/ — United Spinal Association’s membership division, National Spinal Cord Injury Association (NSCIA), will host two free webinars this September for people living with disabilities and their caregivers that will focus on ways to discover a healthy & active lifestyle and how to overcome the challenges of chronic health issues such as spinal cord injury (SCI), MS, polio, ALS or spina bifida.
“For people living with disabilities and their caregivers, the challenges of maintaining a healthy and active lifestyle can be overwhelming at times. But with the right strategy and outlook, it’s within everyone’s reach. These webinars will build a foundation for many to discover better health, as well as happiness and success,” said Marlene Perkins, VP of Corporate and Community Relations at United Spinal.