Monday, October 21, 2019

Tag: Quality Of Life

Man shares experience as quadriplegic

Published: September 22, 2019 | Spinal Cord Injury: , ,

If it were possible to travel back in time, many people might choose to edit their past decisions or actions.

Austin Reynolds is often asked if he would go back three years and do things differently if he could. A serious spinal cord injury drastically changed his world, but Reynolds said it is not something he would want to change about his life because of how the experience has shaped him into a better person.

Telenutrition helps patients with spinal cord injuries

Published: September 13, 2019

Around 300,000 people are living with a spinal cord injury.

Wheel the World launches accessible travel marketplace

Published: August 27, 2019

Wheel the World has unveiled a new online travel marketplace to provide accessible travel to those living with disabilities.

Backed by Booking.com, the accessible travel start-up has created a one-stop-shop for travellers with disabilities offering accessible tours and experiences, including accommodations and transportation by partnering with curated local tour operators who are trained and certified Wheel the World team members.

Through an extensive research process, Wheel the World identifies necessary accessibility requirements and equipment and trains its operators to develop inclusive trips designed to accommodate those with disabilities.

From multi-day trips with outdoor activities, such as hiking, scuba diving and kayaking, to single day activities like ziplining in Costa Rica and handbiking across the Golden Gate Bridge in San Francisco or through Central Park in New York, the start-up currently offers more than 30 travel destinations through its platform, including accommodations, activities and transportation.

Destinations include Patagonia, Maui, Easter Island, Machu Picchu, Santiago, Mexico, and Costa Rica, with plans to have 150 destinations and tour packages by the end of 2020.

The idea for Wheel the World came from the personal journey of two best friends, determined to see the world together. Co-founders Álvaro Silberstein and Camilo Navarro, both from Chile, embarked on the challenge of completing the W Circuit in Patagonia, with Silberstein, a quadriplegic, in a hiking wheelchair.

“We truly believe adventure is for all and that’s why we are committed to creating inclusive tourism and eliminate the barriers that keep people from travelling,” said Álvaro.

“While people might not think they have the opportunity to travel like this, we believe we can help everyone enjoy our amazing world without limits.

“We started promoting trips to isolated places like our original trip to Patagonia. However, we realised that people with disabilities still struggle to find even more traditional travel experiences that are designed to be accessible. So, we expanded to all types of travel including cultural, leisure, vacation and city explorations.”

Last year, Silberstein became the first quadriplegic to traverse an 11-kilometre section of the Inka trail. You can read more about that here.

Paralyzed Patients Regain the Use of Their Hands Thanks to Breakthrough Nerve Surgery in...

Published: August 14, 2019 | Spinal Cord Injury:

Recent surgical trials have bestowed new life on quadriplegics who can now return to activities they never thought they’d be able to do again, thanks to an innovative surgery that relocates nerves.

A dirt bike accident in 2015 left Australian Paul Robinson, now in his 30s, paralyzed from the chest down. Robinson landed on his head and broke one of the vertebrae in his neck, leaving him confined to a wheelchair and rarely able to leave his home. He was one of 16 people participating in a medical trial at Austin Health in Melbourne that used nerve transfers to re-enervate paralyzed muscles in quadriplegic patients.

Just Because I’m in a Wheelchair Doesn’t Mean Life Stops

Published: June 21, 2019

From giving motivational talks to making people laugh as a “sit-down comedian,” Jessie Chin shares why his paralysis can’t keep him from living his best life.

In the summer of 2012, Jessie Chin had just finished his freshman year of college and was looking for some summer fun. He and his friends decided to take a ferry from Staten Island to New York City for the day.

Quadriplegic Man Uses His Face to Move Wheelchair

Published: May 22, 2019 | Spinal Cord Injury: ,

Jim Ryan was a pilot for 38 years but that all changed three years ago while on vacation in Hawaii with his wife, Isabelle.

Christopher & Dana Reeve Foundation Announces 100,000 Families Received One-on-One Assistance through the Paralysis...

Published: May 8, 2019

Christopher & Dana Reeve FoundationThe Paralysis Resource Center provides information, resources and grants to support the 5.4 million Americans living with paralysis

SHORT HILLS, N.J., May 8, 2019 — The Christopher & Dana Reeve Foundation Paralysis Resource Center (PRC), a free, comprehensive, national service for individuals living with paralysis and their caregivers, announced today that it has provided direct counseling and assistance to over 100,000 individuals and families since its launch in 2002.

‘It’s going to be okay’: Mother uses personal experience to support people with spinal...

Published: April 4, 2019

Mandurah mother-of-two Tayla Stone said if she could send a message to her teenage self, it would be that things are going to be okay.

Sustaining a life-changing spinal cord injury in a dirt bike accident at just 16 years old, she found herself facing a confusing and unknown future.

But after tackling all the challenges the situation threw at her, Ms Stone will now use her experiences to support other people who find themselves in the position she was once in.

The tremendous spirit of tetraplegic Catriona Williams – who defies odds to fundraise for...

Published: February 23, 2019 | Spinal Cord Injury:

This year Catriona will complete a month-long cycle tour in France.

It happened just before Christmas on the 10th of November 2002.

“You never forget your date,” she tells me.

It was the day Catriona Williams, one of our most accomplished horsewomen and leading contender for the Olympics, fell from her mount and broke her neck.

“I knew it was a bit more serious than a collarbone because the pain was so severe.”

Electrical stimulation technique helps patients with spinal cord injury

Published: February 19, 2019 | Spinal Cord Injury: ,

For many individuals with spinal cord injury, restoring autonomic functions – such as blood pressure control, bowel, bladder and sexual function – is of a higher priority than walking again.

Paralysis (loss of muscle function) is the most visible consequence of a spinal cord injury. Historically, there have been few significant advances in the treatment of such paralysis in individuals with long-term injuries.

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