CHICAGO — In the weeks following the car accident that left him paralyzed below the waist, Geoff Luther was haunted by worries that he’d lost the chance to be a father.
Then 27, he hadn’t yet fallen in love with the woman of his dreams. When he did, he wanted to start a family with her. But how?
“It was some of the stuff I was thinking about the most,” said Luther, who rolled his S-10 Blazer on black ice. “What about having children? What about getting married? Can you naturally conceive a family?”
His questions are shared by thousands of young men each year who suffer paralyzing spinal injuries. But many may give up hope — or undergo unnecessary, invasive procedures — because their doctors don’t know about simple ways to help them.
Doctors at the Rehabilitation Institute of Chicago told Luther, now 43, that most men with spinal cord injuries can father children. But the treatments that allowed Luther and his wife, Tammy, 38, to conceive aren’t offered to many injured men.
Instead some fertility doctors jump immediately to expensive, invasive procedures, such as surgically extracting sperm from the testes, when confronted by a man in a wheelchair.
The Luthers, who live in Oak Brook, Ill., avoided that procedure. Nonetheless, it took six years and, they acknowledge frankly, tens of thousands of dollars before they succeeded. But after a tour through most of the methods and procedures of rehab fertility medicine, the Luthers conceived their son, Trent, now 6, and daughter Kayla, now 3.
“We went through it all,” Tammy Luther said.
Their story illustrates how determined couples can conceive with guidance from medical professionals who are well-versed in techniques that work for paralyzed men.
Unfortunately, many fertility centers don’t know the basics.
Nancy Brackett, a researcher at the Miami Project to Cure Paralysis, surveyed more than 100 fertility centers and discovered that 28 percent don’t offer two simple techniques that rehab experts have used successfully for years and that work for 95 percent of paraplegic and quadriplegic men. Brackett published her findings in the October issue of Fertility and Sterility, a journal read by reproductive medicine doctors, and now she has made the issue her soapbox.
Most men with spinal cord injuries have varying degrees of difficulty with erection and ejaculation. Medications like Viagra help some. Others need only a special vibrator to collect sperm; insemination of their partners can be done with a syringe in private, at home.
Paul and Shelly LeVasseur of Winfield, Ill., felt lucky they could conceive at home.
“There are times when it is rather clinical and there are times when it is very romantic,” Paul LeVasseur said. Their children are Ben, 6, and Danielle, 2, and they are trying for another.
Other injured men require a different device that that triggers ejaculation with a low-voltage impulse of electricity, a procedure borrowed from animal husbandry and developed for use in humans by Dr. Carol J. Bennett and her colleagues in University of Michigan’s urology department.
Geoff Luther remembers asking his doctor: “How will you know when you have it turned up high enough? Will my ears start smoking or what?”
That technique worked for Luther, but his sperm quality was low. So, a single sperm was injected into one of Tammy’s eggs to create an embryo. The resulting embryo was implanted in Tammy’s womb and, finally, she was pregnant.
“I loved being pregnant,” she said.
Brackett wants doctors to try simple solutions before assuming they must use surgical means to retrieve sperm from the testes of injured men. In her survey, some doctors said they lacked training or equipment, or were unfamiliar with the methods.
“If we forget these simple things, it’s almost like going backward,” Brackett said. “It does a disservice to these patients.”
Of the 11,000 spinal cord injuries annually in the United States, 80 percent are among men between the ages of 16 and 45 — the prime reproductive years.
Rehabilitation Institute nurse practitioner Diane Rowles, who teaches a class called Sexuality and Fertility to patients, said sex is “a very private topic, a very personal topic.” But if medical staff don’t educate spine injury patients about sex and fertility, they may assume the worst: that they’re not able to have a sex life or father children.
“It’s a big thing. You just can’t leave it out,” Rowles said. “They need to learn about it, too.”
The Luthers’ children haven’t asked where babies come from. Tammy Luther said someday, if they ask, she’ll tell them about many different ways children come into the world, from adoption to reproduction with medical help.
Geoff Luther said he doesn’t know what he would say. “I still haven’t had that talk with my mom and dad, so I’m not sure,” he said.
He does know what he would say to any man with a spinal cord injury who wants to be a father: “Search out the best doctors, or you can waste a lot of time and resources.”